It hit home for me today when I went to a Zumbini class (a music/dance) type of class for parents and their young children. I looked around the room at kids much younger than Alex and saw them dancing, walking, coming up to me and talking. While it was great to expose Alex to this type of environment, I couldn’t…
Read More
For the last few years, doctors’ offices have become our second home. Whether we were there for infertility procedures, monitoring, consults with nurses, IVF check ups, pregnancy ultrasounds, non-stress tests, delivery, visits for our son, therapies, or overnight stays at the hospital, I’ve literally felt my body absorb the medical smell of a sterile facility and radiate it from my…
Read More
The five stages of grief (Kübler-Ross model) are well-known. Depression. Bargaining. Anger. Denial & Isolation. Acceptance. I didn’t put them in order for a reason, because there really isn’t an order. When you’re grieving, you supposedly go back and forth, in and out, of each stage rather easily. Unless you’ve grieved someone, or something, you don’t realize what grief can…
Read More
Recently, I had a warrior mama email me who just received the diagnosis of infantile spasms (IS) for her son. She already knew about her child’s brain injury, but he had remained seizure-free for a while. However, due to her diligence, she knew IS when she saw it and took him to the hospital where he was treated with…
Read More
The night before the anniversary of Alex’s diagnosis, I had been feeling twinges of grief and sadness, but nothing overpowering. The memories from the past year were there, but I tried to keep myself busy and push them away. After a long day, I snuggled my baby and put him to bed and went to sleep myself. I woke up…
Read More